Please note that the URL for this site has changed to a 'phe.org.uk' address from 'nhs.uk'. This reflects changes we have made to hosting for this site.
This website no longer has the most up-to-date information about education and training for the NHS screening programmes.
Read the NHS population screening: education and training page on GOV.UK for guidance and resources.
Access e-learning for all NHS Screening Programmes on Health Education England's e-learning for Healthcare (e-LfH) website.
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Useful Websites

 

Disclaimer

Please note that NHS Screening Programmes does not take any responsibility whatever for the content of these external websites, or practice that may derive there from.

 

Websites

Antenatal Results and Choices (ARC)

ARC is a charity providing support and information to parents throughout the antenatal testing process.

Children Living with Inherited Metabolic Diseases (CLIMB)

CLIMB are a national organisation working on behalf of children, young people and families affected by metabolic disease.

Contact a Family

Contact a Family have information on over 1,000 rare syndromes and rare disorders. They have compiled a support pack for health professionals entitled "Working with families affected by a disability or health condition - from pregnancy to pre-school".

This pack contains 11 information sheets on different aspects of sharing news about a child. Its aim is to highlight parents' needs for accessible information and appropriate support when receiving news about a disability or health condition.

Cystic Fibrosis Trust

The Cystic Fibrosis Trust provides information, advice and support to anyone affected by Cystic Fibrosis.

Healthtalkonline antenatal screening

Healthtalkonline - Interviews with women and couples to find out their experiences of antenatal screening.

Institute of Child Health

The University College London Institute of Child Health website provides information for health professionals and the public on all aspects of child health.

Sickle Cell Society

The Sickle Cell Society website provides information about sickle cell disorders.

National Society for Phenylketonuria (NSPKU)

The NSPKU exists to help and support people with PKU, their families and carers.

NHS National Genetics Education and Development Centre

The NHS National Genetics Education and Development Centre is working with a range of groups throughout the UK to facilitate the integration of genetics education into all levels of education and training for all NHS health professionals.

This website gives health professional educators and trainers access to genetics education resources.

Those teaching genetics or learning about the impact of genetics knowledge on practice, have access to resources and courses specific to their practice.

UK Thalassaemia Society

The UK Thalassaemia Society website provides information and education about thalassaemia

 
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This website no longer has the most up-to-date information about education and training for the NHS screening programmes.

Read the NHS population screening: education and training page on GOV.UK for guidance and resources.

Access e-learning for all NHS Screening Programmes on Health Education England's e-learning for Healthcare (e-LfH) website.