Please note that NHS Screening Programmes does not take any responsibility whatever for the content of these external websites, or practice that may derive there from.
Antenatal Results and Choices (ARC)
ARC is a charity providing support and information to parents throughout the antenatal testing process.
Children Living with Inherited Metabolic Diseases (CLIMB)
CLIMB are a national organisation working on behalf of children, young people and families affected by metabolic disease.
Contact a Family
Contact a Family have information on over 1,000 rare syndromes and rare disorders. They have compiled a support pack for health professionals entitled "Working with families affected by a disability or health condition - from pregnancy to pre-school".
This pack contains 11 information sheets on different aspects of sharing news about a child. Its aim is to highlight parents' needs for accessible information and appropriate support when receiving news about a disability or health condition.
Cystic Fibrosis Trust
The Cystic Fibrosis Trust provides information, advice and support to anyone affected by Cystic Fibrosis.
Healthtalkonline antenatal screening
Healthtalkonline - Interviews with women and couples to find out their experiences of antenatal screening.
Institute of Child Health
The University College London Institute of Child Health website provides information for health professionals and the public on all aspects of child health.
Sickle Cell Society
The Sickle Cell Society website provides information about sickle cell disorders.
National Society for Phenylketonuria (NSPKU)
The NSPKU exists to help and support people with PKU, their families and carers.
NHS National Genetics Education and Development Centre
The NHS National Genetics Education and Development Centre is working with a range of groups throughout the UK to facilitate the integration of genetics education into all levels of education and training for all NHS health professionals.
This website gives health professional educators and trainers access to genetics education resources.
Those teaching genetics or learning about the impact of genetics knowledge on practice, have access to resources and courses specific to their practice.
UK Thalassaemia Society
The UK Thalassaemia Society website provides information and education about thalassaemia